A story of love, resilience, and a life that continues to inspire.
The Sebastian’s Hope Foundation (est. 2025) is a nonprofit organization dedicated to raising awareness of Spinocerebellar Ataxia (SCA2), supporting families and caregivers, and funding international research to discover treatments and, ultimately, a cure.
Through storytelling, education, and joyful advocacy, we carry the message: That rare is not forgotten. That no one is alone. And that hope, when shared, moves us all forward.
Sebastian’s Hope Foundation
We raise awareness of Spinocerebellar Ataxia Type 2 (SCA2), support families and caregivers facing rare neurological diseases, and accelerate global research through collaboration and advocacy.
Together, We Carry Hearts on Wheels
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We’d love to hear from you. Whether you want to support, collaborate, or simply connect, we’re here.
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