Sebastian was a healthy, curious, and playful boy, full of energy and dreams. At age 11, small but noticeable changes began to appear; tasks like holding a cup, writing with a pencil, or keeping his balance became increasingly difficult. These subtle signs led to a life-changing diagnosis: Spinocerebellar Ataxia Type 2 (SCA2), a rare, progressive, and degenerative neurological condition.

From the time of his diagnosis in 2020, Sebastian lived with strength, grace, and extraordinary courage as he navigated the effects of SCA2. He gradually lost many of his motor skills, eventually using a wheelchair full-time and needing assistance with everyday activities. But his joy, curiosity, and hope continued to shine, touching everyone around him.

Sebastian’s Hope Foundation was born from this journey of love, resilience, and faith. Created in his honor, the Foundation reflects the commitment of his parents, Karinna and Sergio, to transform pain into purpose. In living with ataxia, Sebastian taught us what it means to face adversity with heart. Now, in his memory, we continue these efforts, building a legacy rooted in connection, compassion, and hope.

Through advocacy, family support, and research funding, Sebastian’s Hope Foundation reminds families facing SCA2 and other rare diseases that they are not alone. Even in the face of uncertainty, there is still space for dignity, meaning, and healing.

Together, We Carry Hearts on Wheels